As a caregiver I have found myself putting my needs low on my priority list. This is very common for caregivers. But I expect many of us have found ourselves in this position even if you are not caregiving. As a result of not taking consistent care of my needs, I am finding it harder … Continue reading Transformation is like watching a seed grow
My loved one with dementia lives in an assisted living facility. They have an outbreak of Covid19. In the past week 5 more residents and more employees have tested positive. I cannot visit her. Only for urgent medical needs should we take our loved ones out of the facility. The vaccine will not start being … Continue reading My blood pressure is up!
My loved one with dementia has been attending an adult day health program for three years. Given her early onset diagnosis, this program has been a godsend keeping her active and engaged. She loves going to it and missed it greatly during our pandemic shutdown. This week I learned the program is ending on December … Continue reading And Covid19 keeps taking….
My loved one with dementia is my 58 year old sister.She is two years younger than me. She is single, no family other than siblings and a father who is 91 almost 92. She is disabled. I am her guardian, health care advocate and power of attorney. Yet I feel powerless. She needs supervised care. … Continue reading What keeps me up at night
I just received my daily text from my loved one with demetia that she is "on the bus". She attends an adult day health program five days a week. The bus picks her up at her residence and returns her mid afternoon. I am very grateful for the opportunity to send her. For those not … Continue reading On the bus
My loved one with dementia struggles daily with the affects of dementia, add a urinary tract infection and the results are amplified. But the impact of an UTI on my loved one is very cunning. It does not manifest itself overnight rather slowly creeps in. It can go unnoticed for days even weeks. She does … Continue reading Next time I will not ignore that little voice in my head.
I agreed to a 7 day challenge from my business coach. I agreed to spend one minute every day in a cold shower to experience discomfort. I did not agree willingly at first. I don't like cold water. I grew up in northern Massachusetts not far from the Atlantic ocean beaches. That is "cold" water. … Continue reading Becoming comfortable with being uncomfortable
I am counting my blessings no matter how I find them. I am my loved one with dementia's guardian and health care advocate. I attend all medical appointments and her care is coordinated with me. There are several health issues that have been monitored by blood tests; glucose, triglycerides, cholesterol etc. Her doctors expressed concern … Continue reading I found a “silver lining” to our shelter at home for Covid-19
It is July 4th and in the US we celebrate our declaration of "independence" from England. For those history buffs: Americans celebrate independence on July 4th, the date shown on the much-publicized Declaration of Independence, rather than on July 2nd, the date the resolution of independence was approved in a closed session of Congress. But … Continue reading Independence Day has new meaning for me
It is exhausting mentally and physically managing healthcare for loved ones and keeping them safe! In addition to my loved one with dementia, I assist my 91 year old dad. He continues to live alone in the home I grew up in. He is doing well and has been adhering to the shelter at home … Continue reading I am not taking NO for an answer when it comes to my loved one’s health
My loved one living at an assisted living had to be tested for the Covid19 virus. Testing was arranged, I hurried to get all the needed permissions for the Primary Care office and then we waited. We waited 5 days to hear results. The test was negative. Years ago I had a biopsy. A routine … Continue reading Hurry up and wait….
I will be brief this week....have to share this.... If you have not been making masks you probably know someone who has been sewing and/or you've been given perhaps even purchased a hand-made mask. A mask so you can protect others from the Covid-19 virus when in public. I have sewn several masks but had … Continue reading Mask (recipe) swap????
It will take an act of Congress change to help Lymphedema patients manage their condition. Lymphedema refers to swelling that generally occurs in one of your arms or legs. Sometimes both arms or both legs swell. But it can happen to any part of your body. Lymphedema is most commonly caused by the removal of or damage to … Continue reading It will take an act of Congress to help patients…